A Booby Prize

Wednesday was a day of doctors. I suppose I should be getting used to that, but so far I haven't. My surgical follow up was exactly as planned, except for getting a LOOK and a very snarky "and now you're sore, AREN'T YOU" comment from the surgeon for shoveling that morning. Yeah yeah. Lesson learned. Sadly, even though I'm healing fine and all my franken-ness is now stitch-free, the inside isn't fully healed (hence the chastisement for shoveling, because heavy lifting/labor could tear scar tissue and cause issues). Therefore, he said wait until after the new year to go back to kickboxing. This was Wednesday morning, before that last test came back and before I met my Oncologist. We'll get back to that in a minute.

Related: a friend of mine apparently objects to "Frankenboob" not because it's rude, nor because it's inaccurate (after all, Frankenstein was the doctor, not the monster), but because it does't "roll off the tongue in a poetic way". I have the best mental image of him testing, out loud, each different technical and slang term for every part of a breast to find the right combo(he assures me that's exactly what happened while stuck in traffic the other day). "Frankenboob" will now be "Frankenknocker". FK for short, which works for me on multiple levels. 

It DOES sounds more lyrical. I have no argument.

Wednesday afternoon I met my team at MN Oncology. It's ridiculous that FK has a team.

My Oncologist is also very kind and direct, a quality I appreciate since she had less than stellar news. The two tumors I had removed were sent to a lab in California for something called an Oncotype test. Essentially it's a genetic test done on the tumor itself, which is then plugged into a statistical database that's been built over however many decades of cancer research of my particular type to spit out a percentage of likelihood my cancer would come back anywhere in the body. The tumor originally found on my mammogram isn't a big deal: it's grade 1 (slow growing, not aggressive). That littler one though, that's the mean one. Grade 3 is more aggressive: my risk factor is too high.

So. I will have a port put into my chest sometime next week and get an electrocardiogram on my heart sometime in the next two weeks (did you know one of the awesome side effects for chemo can be heart damage? I didn't either.) and on the 16th I'll start five months of chemo (assuming, of course, that everything goes according to plan, which honestly hasn't happened since I went in for a routine mammogram). Radiation will start after chemo. There isn't currently any detectable cancer in my body, just to be clear: the intent of this round of treatment is to kill anything that's too small to detect so it doesn't come back anywhere else (that's what metastatic means - breast cancer with a wandering streak).

There's a door prize for getting told you're starting chemo in a couple of weeks. A nurse's assistant came in to give me a large 3 ring binder full of information, a nice clear list of which drugs are administered when, the side effects, and when I should call the office if side effects are bad. Along with the binder she awkwardly handed me a thermometer, like she KNEW it's ridiculous. But since three different kinds of fun poison will be dribbled in the port (each session will be a couple hours) and the drugs will kill off good cells and bad ones, my immune system will be sad and slow. Monitoring for fever will be a thing, and apparently adults don't usually have a thermometer at home, so they give everyone one when treatment starts.

Aren't I just a barrel of fun these days? Yeah, I think so too.

Kickboxing is off until next fall at the earliest (I've sadly already texted the head instructor in Burnsville to ask if we can put my membership on hold or if I should just start over, because it's too expensive to just let it sit and bill every month for that long). Honestly I'm pretty pissed about that.

I won't be able to shovel my own driveway this winter after all (looking into snow removal services now). I'm pissed about that too, for the expense and the inconvenience. However, I may not be so pissed about it when I don't have to bundle up and slide down my driveway. We'll see.

The rest I don't know about yet. Not everyone has the same side effects, but I plan for the worst and hope for better. Christmas/Yule stuff will depend entirely on how I react to treatment, which is every other week starting the 16th for two months, then weekly for three more months.

The big question here is will I rock the Telly Savalas look, or will I wig out...I don't know that yet either.

I suppose I could cancel the appointment I have for a haircut in December, though.

Tiny Indignities: Brought to You by Frankenboob

First, thank you. To everyone who has been so damn supportive and kind (and patient!) please know I appreciate it all.

Second, I'm ok. My awesome surgeon (who was VERY excited and happy in the pre-op room...something that I considered weird until I realized I WANT a surgeon who's passionate about his job) got it all. Both Francis and his sidekick have clear margins, which means the cancer hasn't spread outside the bits he cut out. My lymph node was also clear, which is a huge deal. Early detection, people. I'm a lucky girl.

Things are healing, I'm down to very occasional ice packs and ibuprofen, and I still can't do a hell of a lot (which makes me look at my kickboxing/MMA uniform bag AND, oddly enough, the remaining leaves in the back yard, with great sadness). I still don't know for certain about chemo. I don't see anyone for radiation until next Tuesday, so I don't exactly know when that'll start, but I suspect not until all my stitches are dissolved.

Tomorrow is my 2 week surgical follow up, although technically yesterday was the actual 2 week mark. Tomorrow is also my Oncology consult, because one of the door prizes for cancer is getting your very own specialty doc for pretty much forever.

I'm going through the intake paperwork for the Oncologist and am struck by the frank end-of-life preference questions.  Is it important to me to be able to feed myself. Is it important to me that my doctor tell me when I'll die. Is it important for me to not be a burden on my family/loved ones. Yeah. Morbid, I know, but here's the deal: Cancer is a disease that just progressively strips a person's dignity away, little bites at a time. I have a few (since the MRI boob-box debacle):

1. For a few hours on surgery day I was a radioactive superhero. Or at least Frankenboob was. Maybe not a superhero...could be the Hulk.Anyway.  I'm not as well read on gamma rays vs radioactive isotopes or whatever the hell was in those two little alien tracking devices the inserted into my breast that morning. All I know is after each one the nurse had to run a Geiger counter or something over me,which screamed (not me, the instrument) in the appropriate places. So I'm lying on a hospital bed in a darkened room with one boob just hanging out in the air for the doctor, nurse, and ultrasound tech (after he's stuck a needle in there twice...yep, I watched on the ultrasound machine) and the nurse had to wave a screaming wand over it. I mean, what better way to start my day?
2. After pre-op excitement (including yet another nurse who can't find my veins, resulting in multiple sticks and a delay in letting my peeps into the pre-op room to hang until I went to the OR), a 10 year old anesthesiologist stopped by. Doogie Howser is alive and administering Propofol and Fentanyl, you guys, and clearly I'm old. But hey, I got to walk in my breezy backless surgery gown and hot purple socks to the OR! 
3. Sorry kids, I didn't do or say anything weird in recovery that I know of. And the nurse isn't telling. She did say I have pretty eyes. I think. I was busy being proud I didn't have any pee-my-pants accidents in surgery (yes I'm certain: I had underwear on through surgery and they were still there when I got out). 
4. It took me three days (probably until the Propofol was mostly worn off) to realize SOMEONE had to hold me up in and wrap the mile long ace bandage around my boobs. I'm sure that was SUPER fun. I wonder if they dropped me...my feet hung off the table in the operating room, and that table isn't very wide.
5. I can't wear deodorant until the stitches in my armpit have fully dissolved and the steri strips fall off and the doctor says it's ok. 
1. Related: I have discovered that I am not a hippie. I would like my razor and deodorant back immediately, please. (Good Goddess, please for the sake of all our noses...give me back my deodorant.)
6. Hydrocodone prescriptions (that's Vicodin, if you aren't up on your opioid addiction literature) come with a stool softener. I'm suddenly 8,000 years old. 
7. Hydrocodone prescriptions apparently also come with a warning letter from the pharmacy. It arrived, detailing the "dangers of opioids" TWO WEEKS after I was done with the prescription. Helpful. 
8. Side effects of future treatments will be...well, they should be less awful than chemo, but less fun than getting a cavity drilled. 

We'll see after tomorrow...because maybe the biggest indignity is not knowing. Everything happens in increments, so there's an overall grieving process of what life was going to be like BC (before cancer) vs what it will be like AC (after cancer), PLUS a series of small stabs of worry every time a new test is run "just to confirm". My recent history with "just to confirm nothing's wrong" tests hasn't been great. 

I've filled out the Oncology form. I'm ready for tomorrow's appointments...dear MN: please go for the 1" snowfall tonight, not the 78" option, ok? I don't want to leave at 6am for my 9:30am appointment...and I need my surgeon to say I can deodorize again. 

Also, since I included boobs AND drugs in this post, HI NSA! 

Bye Francis (This post is not safe for work or pretty much any other respectable sensibility.)

I've started and deleted this post approximately 700 bazillion times in the past few weeks, as doctors have poked and prodded (oops, sorry about that second stick, the one that went into the muscle!) and set new appointments and "just check to be sure everything is ok" tests have been scheduled and endured. Even now, I've cut 90% of this post, because it's not useful or too angry or too sad, and because it will inevitably be taken to heart by the wrong people, and because I'm tired of the casual solutioners trying to solution shit that doesn't actually help at all. It's amazing how careful I've learned to be in a few weeks about saying the right thing to avoid being inconvenient or making anyone else uncomfortable. 

Example: the Deadpool clip in this post is extremely violent. There. You are warned. 

I'm so goddamned tired of feeling.

I'm angry as fuck that the rest of my life will have a specter of "what if it's back" every time I go to what used to be a normal checkup. I'm angry I will pretty certainly have to go on a hormone blocker for the next 5-10 years.  A demon of a pill with pretty awful side effects that may or may not get me, but will almost assuredly cause early menopause and removes yet more choices I still had about my body and my life. I'm angry and sad that until I know my staging and statistical likelihood of recurrence AFTER I know my treatment plan, I have to recognize that I may not see my niece and nephews graduate. 

I'm anxious and terrified about tomorrow, even though I know every step of what's going to happen. What if they don't get it all? What if the results are worst possible and I have to have chemo or my staging is more immediately bad? What if I pee my pants during surgery? What if I react adversely to the anesthesia? What if I'm one of those creepy people who wake up in the middle of the procedure, paralyzed and feeling EVERYTHING? What if I don't recover fast enough? What if I die on the table? 

Why not put it out of my head and focus on the positive? I suppose in the scheme of things I'm incredibly lucky. I have the same cancer 80% of breast-cancer-havers have. Francis was discovered ridiculously early and his evil, more aggressive sidekick was discovered because I decided the indignities of an MRI aren't as bad as not knowing. My ultrasound tech is an amazing woman who made certain she found the sidekick so we could biopsy it and get that little bastard included in the lumpectomy tomorrow, even though it's 0.6cm. I don't have stage IV double mastectomy 6 months to live cancer: that part my medical team seems quite sure of, and that's unbelievably lucky. 

Yeah. That didn't do shit. Maybe tomorrow night it'll help, or maybe the anesthesia will leave me loopy and tired enough that I don't care. Tonight, when I'm getting ready to take the first of two special-surgery-soap showers and my dog is somewhere else and I'm supposed to sleep (yeah right), positive is worthless. 

I actually want to learn the trick to putting worst case scenarios out of my mind without the benefit of meditation (which I can and DO regularly do). Because that's not how my mind works. 

In order to even set foot in the building, and give up all that control and just let some stranger knock me out and cut me open, I HAVE to decide when I'm capable of deciding and communicating where my boys will go if things went bad. I HAVE to have a letter written and in my desk giving instructions to the few people with keys to my house. Just in case. Is that morbid? Maybe, but my outlook on life has been "prepare for the worst and see what happens" for as long as I can remember.

It makes me feel slightly better to know I won't leave them to shelters or have any arguing over what happens in my house, because I have so little control over what's going on. I hate it with every breath in this body that betrayed me. 

It's only been, what, 6 weeks? I'm already so fucking tired. 

Angry will get me through, if I can be angry enough to blow terrified and sad aside for a while. 

Carrie Fisher said: stay afraid, but do it anyway. 

So fuck you, Francis. I don't want to be a hero: I just want you both gone.